Christmas is behind us and New Years is on the way.

I got through Christmas and we had a nice day.

We are planning our annual New Years trip to Florida tomorrow. We will spend some time at Regina's and see Jason as well as 5 of our grandkids. We will stop by Della and Clark's and then to Rick's moms. Donna is actually going to sing at their New Years Eve Service!
UPDATE:  She was not able to sing, she is getting vry congested and coughing.  She can not go to church...


On my Lupus I have been having very painful nights. Alot of it is my arms and my hands actually feel like they are on fire they feel so hot. Yesterday I had extreme knee pain in both knees but it was all gone today...

One day at a time....

I have to trust....

Confusing, frustrating, annoying......Dr says I have Fibromyalgia too.....she gave me a pamphlet on it and I see that it is not unusual to have Lupus then to be diagnosed with Fibromyalgia afterwards but NOT vise versa......Both are similar in symptoms, it is not unusual for Lupus patients to have Fibromyalgia.....I just don't want to have either....denial is what I want....frustrated is what I feel......

Night time pain and numbing, tingling pain in both legs both arms all night or anytime I am still for a period of time was my biggest concern to talk to her about when I went in today and the not sleeping well.....those were 2 big clues to her...I guess...this led to changing 2 meds I have been on for 2+ years....that makes me nervous but I guess if I am going to go to this Rhemotologist that I have to trust her, believe her and do what she says...... Ugh!!!

Lord help me to listen, trust and be patient....

2 Cor. 1:7 And our hope for you is firm, because we know that just as you share in our sufferings, so also you share in our comfort.

I anxiously await to see what will the next step is....

On Monday December 5th I have my follow up with my Rheumotologist. This will be the first time I have seen her since my Lupus diagnoses. I have had to call her 3 times due to side effects of the medication I am on. Plaquenil causes stomach issues and I have had to cut back to half the medication that she originally prescribed due to the side effects. I also have had to start a new prescription for the side effects...

So I anxiously await to see what will the next step is....the daytime pain is MUCH better, nighttime is same or worse...joint pain..both arms and legs. I am still on a muscle relaxer and an anti-inflammatory that she had said she wants to wean me off of and increase plaquenil.

Other things that have been ah ha moments since my diagnoses is the butterfly rash on my chest and that my primary dr thinks previous lung issues could of been Lupus before we knew I had it....all said I anxiously await my 11:30 appointment.

I'm Thankful and I'm Blessed

I got family everywhere but here..both daughters are in New York City for long weekend. My son in Corpus flys everyday (US Navy Pilot), other son is hunting with Rick for long weekend at hunting lease in our camper....I am here alone. No plans..I can do what I like when I like or do nothing....I have a couple Christmas cooking craft ideas I may do. I can always clean the house...or go shopping but right now here I sit with my iPad curled up in my pjs with a Christmas Movie on...I can do that all day if I want to too.....I think I would rather be in NYC but since I'm not...I'll be thankful I'm blessed and get on with my day.