Blog catch up!!

Blog catch up!!


Thanksgiving
Jason and Rose and boys came. Little Jason and boys came for the day Becky had to work and Regina and Dave didn't come because their wedding is in a few weeks. Heather and kids were there but Matt had to work.  We had a great time of visiting and a wonderful meal.

Deen Wedding awesome wedding, and reception tons of pics.  We stayed at their house a week and babysat the grand daughters.

Christmas was just me and Rick but we had Christmas Eve at this parents and went to Heather and Matts house Christmas morning.

My trip to Virginia. Good flight got in 7:30 pm  pizza for dinner
Day 1. Donuts and cook out.  TV and getting hooked on Walking Dead series.
We made gingerbread house
Day 2. Captain George's seafood Buffett. Played spoons.good family time.
Day 3 NEX shopping with whole family andI got Coach cross body purse. County Grill BBQ best food ever. Great family day.
Day 4 New Years Eve we had appetizers and lots of fun. Played spoons.
day 5 New Years Day 2015!  Rose and I went shopping boys watched game.played spoons.jason made the BEST PRIME RIB I ever ate. Sooo good.
Day 6 I did a little more shopping with Jason at NEX had a good mother son day.
Day 7 got up and left by 6:30 am.  Had a great trip and a bumpy ride home.  Glad to see my hubby waiting for me at the top of the escalator at ATL.

Update Doctor Visits and Test

Visited my Gastroenterologist, Dr Schorr Due to severe stomach aches and nausea  and vomiting and diarrhea. He sent me for a Colonoscopy And found 2 precancerous Polyps Which he removed. I also had an Endoscopy And results found No abnormalities.  PRAISE

I started on 3 New meds for very sensitive Stomach, spastic colon or IBS which I knew I had but has worsened.

Saw my Rheumy For my 3 month check up As well as blood work etc.

This week has been much better for my stomach issues.  I think I have found the proper amount which has been a concern to not cause even more issues.  PRAISE

Warfare

Not sure if I had blogged about this or not but I have been having major stomach issues. I was just racking it up to having IBS but after looking back at my journaling I realized a couple weeks ago this is worse than ever and I am down 16+- pounds INVOLUNTARY!  That's unheard of for me!  If I tried to lose 16 pounds it would be warfare. So I have continued to journal because never before has my IBS including vomiting...so disgusting and frustrating.  Just got new insurance from my hubby's new job so I can finally get off Cobra!  Praise The Lord!!!! So I see my Primary Dr tomorrow and will get referrals to Gastronologist from her...praying the test won't be evasive to find out what this is but I'm pretty sure it's not going to be fun.....

 To God be the glory!

Jude 1:25 To the only wise God our Saviour, be glory and majesty, dominion and power, both now and ever. Amen.

Not by the hair of my chinny chin chin....

Saw my Rhuemy Friday the 11th of July. My main issues this trip are my arms hurting tingling and numbing pain at night. Looking back on my blog this was a complaint the first month I was diagnosed.(Oct 2001)  I did see a Neurologist and he said I needed the Carpal Tunnel surgery but no I refuse. Too much surgery already.....  ALSO My hair falling out of my head. It's getting very thin on top.  Weird that it is growing on my forehead and face all over..my eyebrows don't grow but I have hair on my chin...ugh!!!
She told me to increase my Tramodol for the pain and get Biotin for my hair falling out.  I had blood work done and my Urine check.  Bloodwork came back ok. Urine has blood and white cells in it..white cells are 20 and should be 0-5. I don't have any symptoms so she said just let her know if I do.  This makes me nervous but ok....God is in control.

Ready or not...summer is here!

June 17th. Caeleigh age 12 (turning 13, July 2nd), MaKenna age 11 and Rylee age 8 arrive to spend time with us until July 6th. Praying for energy and strength to keep up with them and to show them a great time with great memories for them to look back on long after I'm gone. Today is the 27th. I made a picture slide show of all we've done from swimming at the neighborhood pool to the waterpark, 2 movies, home made crafts, dress up, the vet trip, spending time with great GMA Carlisle and of course meals out like Brusters, IHOP and McDonalds. Caeleighs birthday is coming up and so is the 4 th of July. I've never applied more sunscreen in my life! On the 28th we took the girls to the lake house. Hubby shopped for the meals, got the girls new bathing suits and water shoes and made the meals. I purposely took a back seat and let him. The lemon pepper wings were awesome.  The day was full of sun, lake and I even squeezed in a nap. I drove home so he could get a break.  He needed one.
Regina and Dave and Jason and Becky and boys will be up for a long weekend on the 1st of July.the girls think they are coming the next day.  It was a great surprise and Caeleigh had a nice birthday.  Little Jason and Becky and JJ and Zac came down Friday night till Monday. We also celebrated my sil Matt's 40th birthday. The kids went to fireworks except for Ben and Heather and Matt (Ben hates loud noises). Rick and I stayed home and slept.  All in all we had a great trip, it was tiring, I'm not gonna say it wasn't. And we had some tiring trying days but I think it went as good as it could and I have tons of pics. I'm tanner than I ever remember being.  Not sure when I will ever go to the pool again....ha!!

Lupus a Rash from the Sun

Since the pool opened me and Heather have been going to the pool with the kids about everyday for 2-3 hours. I have wore 30+SPF, I wear my hat, even in the pool and sit in shade when I am not in water.....The Week of June 16th thru 20th my granddaughters from Florida came up to spend a couple weeks with us. We went to the pool every day and I noticed Tuesday a small red rash on my right ankle.  By Wednesday it was up on my shin and my ankles seemed to be swelled.  On Thursday I decided I needed a break from the sun and by Thursday night it's kinda splotchy and it looks like red dots...where it's possibly healing...Very strange...hopefully it will just heal up and not get worse.  I did ask in a Lupus Facebook page their opinion.  It was same as mine pretty much.  Lupus rash from sun...ugh!!!! So hard not to go to pool.  But I will be vidulent about continuing to use 30+ On sunscreen, wear my hat and sit in shade when I am not in pool and try to avoid the heat of the day. I sure don't want it on my face..or anywhere for that matter....

Needed to update blog.  That's all I've got.

Welcome summer

So I started on a new med. I took the 4th dose of the Methodextrate I woke up in the night vomiting. Saturday felt bad all day. Was better Sunday morning. Went to church. Ate at Philly cheese steak, felt fine got home. Started diarrhea and vomiting...call doctor Monday. She said stop taking the Metho.  She said to wait a week or 2 to get it out of my system and come see her...another $50 copay to try another medicine....I have a bag full of old meds....ugh!!!

So I waited 2 weeks and saw my Rheumy again and now I am on Leflunomide. I have been on it 2 weeks now and no side effects so far.

I had had more good days then bad since then and my knee that I am almost 1 year out of surgery is finally proving that it indeed is getting better...FINALLY!!! I am going up stairs one leg at time.  Still coming down one at a time due to other knee pain but I am dealing with it.

The pool is open now so I hope to be doing 3 to 4 or more days water aerobics on my noodle. Really helps knee pain.

It's almost June.  Welcome summer!!