Friday, April 26, 2013

Avise Blood Test

Has anyone heard of this NEW blood test to find out for SURE if you have Lupus? It was just approved. I had the test today....anxiously awaiting because I really didn't know there was an "IF" Diagnoses on 10/11. She is doing it because of all the medication I am on and I'm not getting better...I sure hope I haven't been on all this for nothing.  But I would love to not have Lupus....that's mind boggling.....
Here is the link for the test. Results in 3-5 workdays.
The girl in the lab said she has done 7 test since it came out.

I Now Talk in my Sleep!!!!

What a week.  Seems every night was sleepless.  I now talk in my sleep !! Never have done this in 58 years!!  Now I start talking out loud in my sleep!!! Neither of us are getting a good nights sleep because i am waking us both up!!!I'm think its my newest I will talk to Rheumy today.

I have been going to PT 3 times a week and working 1 hour minimum.  When I went Wednesday it was the worst day for pain and when you hurt they hurt you more...I dread today but I leave there and go straight to Rhuemy so hopefully I can talk to her and see what she thinks....

This week was my mom and dads birthdays.  Dads been dead 10 years and Mom almost 2 years.  I miss them so much it's just been a weepy week...

I'm am trying to work on my future because of my Lupus....  Things like work, insurance, Short Term Disability, Family Medical Leave Act, and a few other thighs just bring me to tears.  It's overwhelming...  My poor hubby, he is working longer and harder to compensate but he is never to tired to listen, give and encouraging word or just let me cry.  I don't know what the future holds but God does.  I give it to HIM and take it back everyday!! How crazy am I?  I know what Jesus says:

25 "Therefore I tell you, do not worry about your life, what you will eat or drink, or about your body, what you will wear. Isn't there more to life than food and more to the body than clothing?
26 Look at the birds in the sky: They do not sow, or reap, or gather into barns, yet your heavenly Father feeds them. Aren't you more valuable than they are?
27 And which of you by worrying can add even one hour to his life?
28 Why do you worry about clothing? Think about how the flowers of the field grow; they do not work or spin.
Thank you Jesus!!

Monday, April 15, 2013

A Quick Get Away and Update.

I can't believe it's been over a month since I blogged !! It's not like I have been doing anything!  Just sitting in the recliner!  Or maybe that IS WHY because I have just been sitting in a recliner!! Ha!!

We did have a quick getaway! We took off in our camper with Marley to our camping spot in North Carolina Mountains. Went Tuesday, April 2nd through Sunday the 7th. Jason Rose, Junior, Jarrett, Josh, Jonah and Heather, Matt, Hope, Isabella, and Ben all went.  The kids ran and played and hiked and climbed rocks and rode the T-Rex and we had and egg hunt and snowball fights.  Lots of family fun times.

 Of course Teena and Gary were already there.We had cold weather, warm weather, rain and it even snowed and had icy roads.  Many campfires and meals together.  We did a little shopping in the little town that were easy in and out for me.  One of my favorites is a little coffee shop that has the best Chai Tea. It was a great time.

Lupus update: Both Knee pain everyday but I took it easy and it went fine.
Used cane when needed but didn't do a lot of walking and stayed pretty closed to camp unless we drove the T-Rex.  Most of this last month I have been under Dr Smiths care since my knee surgery.  I am still in allot of pain. I am shocked at how long the recovery is and how bad the pain has been.  I saw Dr Smith and he insisted I start PT so I Started PT April 10th. So far it's painful but I intend to have a positive attitude.  I told my daughter I was looking at it like I have a personal trainer.

So I continue the PT for 4-6 weeks and see my Ortho Dr May 23rd. FMLA ends on May 28th at work.

The LORD will guide you always; he will satisfy your needs in a sun-scorched land and will strengthen your frame. You will be like a well-watered garden, like a spring whose waters never fail. -- Isaiah 58:11